Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.
Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...
A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...
Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.
When talking about people with hemophilia, use language that creates understanding, not pity, says columnist. Words matter.
Hemophilia A is a rare genetic disorder that affects the blood’s ability to clot properly. It is the most common form of hemophilia, responsible for 80% of all cases. The condition is caused by a ...
Half of the children in Chile with severe hemophilia A and B exhibit joint damage despite receiving preventive treatment, a ...
Extended half-life therapies Eloctate and Alprolix safely and effectively controlled bleeds in hemophilia patients' surgeries ...
What is giroctocogene fitelparvovec for hemophilia? Giroctocogene fitelparvovec, formerly known as SB-525 or PF-07055480, is a gene therapy being developed to reduce the risk of bleeding episodes in ...
What is Hemgenix for hemophilia? Hemgenix (etranacogene dezaparvovec-drlb) is a gene therapy approved to reduce the risk of bleeds in certain adults with hemophilia B. It is administered as a one-time ...
Hemophilia is a rare disorder in which the blood doesn’t clot properly, resulting in the disease’s hallmark symptoms of bleeds — excessive bleeding that extends over a prolonged period of time — that ...
Hemophilia is a disorder wherein the blood is not able to clot properly. As a result, patients bleed easily, and it’s unusually prolonged and heavy. Blood tests that look for unusually low clotting ...