Living with cystic fibrosis used to feel discouraging, but I’ve recently learned that these challenges can be my greatest motivation to advocate for the CF community.
As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
My story was featured in the third plenary at the North American Cystic Fibrosis Foundation, which covered the challenges of health disparities in CF care and research, including access issues.
The Gateway Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Breathing problems (also called respiratory or pulmonary problems) affect the lungs and the airways and are the most serious problems associated with CF. The severity of respiratory problems differs ...
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The Cystic Fibrosis Foundation (the Foundation) is committed to upholding high standards of integrity and transparency in working toward its mission. Individuals and organizations (including ...
The Cystic Fibrosis Foundation assembled an international multidisciplinary committee including hepatologists, gastroenterologists, pulmonologists, pharmacists, nurses, dietitians, as well as an ...
Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: ...