Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.
Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...
Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.
A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...
Half of the children in Chile with severe hemophilia A and B exhibit joint damage despite receiving preventive treatment, a ...
Extended half-life therapies Eloctate and Alprolix safely and effectively controlled bleeds in hemophilia patients' surgeries ...
I’m a hospice chaplain, and one day I was at the nurses’ station, completing my notes from a patient visit, when the fire alarm sounded. Startled, I turned to the nurse, who said the alarm had been ...
Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.
Most people living with chronic illness wrestle with difficult emotions at one point or another, such as frustration, fear, guilt, or helplessness. My husband, Jared, is no exception. Living with ...
Hemophilia is a blood disorder that is characterized by a shortage of specific clotting factors that help to form blood clots and stop bleeding. Historically, the primary treatment for hemophilia is ...