Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...

Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.

A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...

What is Hemgenix for hemophilia? Hemgenix (etranacogene dezaparvovec-drlb) is a gene therapy approved to reduce the risk of bleeds in certain adults with hemophilia B. It is administered as a one-time ...

What is giroctocogene fitelparvovec for hemophilia? Giroctocogene fitelparvovec, formerly known as SB-525 or PF-07055480, is a gene therapy being developed to reduce the risk of bleeding episodes in ...

Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.

More often, Caeleb’s pain hums like a low-level alarm. He’s a living testament to resilience, with a will to keep moving that surpasses his hurt. This is the rhythm of his life, and he has learned to ...

Hemophilia B is the second most common type of hemophilia, affecting an estimated 1 in 25,000 male infants at birth. People with hemophilia are susceptible to easy and excessive bleeding because they ...

Hemophilia B is a rare inherited disease that makes a person susceptible to excessive bleeding after surgery or an injury. In severe cases, it can lead to spontaneous bleeding episodes that occur ...

Cazandra and Joe MacDonald share their 37-year journey together, from a chance meeting in college to raising two sons with severe hemophilia. They reflect on parenting with chronic illness in the ...